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It’s good to be alive when all odds were against it.  On the same day health care passed I passed my MRI scan.  My cancer has shrunk in size to a few nodes of less than one centimeter.  Two years ago I was diagnosed with three areas of metastatic breast cancer. After three operations, radiation, chemo and avastan, the cancers are reduced in size, one not showing on the scan and two less than one centimeter in size. Obama’s speeches on health care and the aggressive treatment I received worked.

Life takes as much getting used to as impending death. I have to get my mind off funerals and wills and on to living.  Time to get myself together.  Not an easy task at the best of times.  When I look at diet and fitness regimes I feel like ground hog day.  Been there and done it numerous times. I reread the South Beach diet, signed up for several low fat online diets and had another look at Atkins, even ordered the next book.  I’ve now been three days without carbohydrates.

I feel as divided about my own health care as the USA is about theirs.  One part of me wants to go on a diet and lose twenty pounds, another part of me wants to pig out and never mind the consequences.

Fitness is something else I’ve been there and done.  Does being alive mean I have to go back to the gym?  Could I still do a rowing machine, lift some respectable weights or do Pilates and keep my wig on at the same time?  It doesn’t feel promising.

So like Obama I have to make compromises. The bill that will get past my divided self will not be all that is needed.  It will not satisfy the part of me that wants to feel revitalized  again after two years of very aggressive cancer treatment and it won’t satisfy the other part of me that wants to lay back and let the chips fall where they may.

Like Obama must have done, I look at what there is to be worked with.  Overweight, exhausted, grumpy, pins and needles in hands and feet and worse of all no voice: recovery doesn’t look good.  If I could start small and get the first bill past my negativity, I could tackle a few modifications and improvements six months or so down the line.  I still have one more month of chemo treatments so I have time to make a plan that I can vote for.

As of three days ago I started on the no carbs diet, induction phase of the Atkins diet and phase 1 of South Beach. I started when I looked in the fridge and found it full of treats. Crowding the fridge were  chocolate cake, blueberry cheesecake, and  a few pieces of carrot cake.  It was as if the Republican tea party had held a meeting in the refrigerator. You couldn’t even find the vegetables. When you did, they looked pathetic, half frozen in the bottom drawer.

There were also a few ready meals that had enough calories to be a dessert.  My fridge was full of cauliflower cheese, spinach in a cream sauce and my current favorite,  creamy mashed potatoes.

Since I’ve had guests around, I’ve  felt justified  in keeping on hand a few boxes of organic chocolate bars. They have no calories because they are organic. Like health care information a few lies accumulate along the way.

Repeat after me: ‘organic chocolate has no calories and you can safely eat five to ten small squares a day’. It should be called orgasmic chocolate. In fact, it’s your duty as a citizen of fat land to eat one of each flavor a day and there’re a lot of flavors.   I actually didn’t have any chocolate left because I’d eaten it all.  I think I only once gave a guest a square.

Exercise is beyond me at this point.  I think it’s sitting next to the public health care option in my internal debate.  The only exercise I get is going out to buy food.  Unfortunately, there are two supermarkets, a food hall and five pastry shops within a radius of three city blocks, so a five to ten minute walk could bring home millions of calories.  I don’t even mind carrying heavy bags as long as they contain food.

I was thrilled that health care passed even with the compromises.  But my own health care bill looms ahead.  Will it be passed? I don’t know.  On one side are friends who say you look better than expected.  Whatever that means. And others who say it’s time to pull yourself back together, to start putting on your wig carefully, as it looks like you put a bag on your head (and feels like that too),  lose some weight, get some new clothes and start exercising.

So life after cancer holds its challenges. For now I’m glad health care passed and I’m glad to be alive. Both were against the odds.

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Would you give this woman drugs? I didn't dress for chemo. I got turned away.

I had a revelation today and a resolution followed. I have to look well to have well-person treatment from the hospital staff.  I’m slow on the uptake. It took me two years into my three-year PhD to realize that my ‘hippy’ long dirty hair and jeans were not speeding up my degree in Education.  In this case my sleep wear is morphing into my ‘going out’ clothes and it is not getting me anywhere medically. Today, just as in school, I decided to turn over a new leaf.  Let’s call it a belated New Year’s resolution. I have to pay attention to my grooming, even though it may compromise  my  first priniciple, ‘be comfortable’ . Maybe I’ve taken this too far because there is a blur between my sleep wear and my going ‘out’ clothes.

I woke up yesterday during chemo. to the reality of the situation that how you look gives hospital staff from cleaners to consultants a clue to your health and if they believe you are seriously ill, they treat you accordingly, which may mean they don’t treat you at all or that your treatment takes longer, while they check and check and check. This is how I arrived for chemo for two days running. I wore some comfy trousers that I could have easily slept in. (I’m not admitting whether I did or not) My hair has fallen out to the extent that I should wear my wig or a proper scarf, but, what the hell, it’s 9.00 and I’ve not slept well, why not throw my long wool everyday scarf and forget it.  No makeup. Voice still an even dimmer whisper, if that is possible.  And, on my first visit, I arrive, limping, and arriving on the wrong day giving more proof that my mental state was deteriorating, too. Usually they would have scrambled around and given me my chemo a day early, especially since the blood tests had been done and were all right. They looked sideways at each other and said, ” I didn’t look well”, and they should postpone treatment until they spoke to my oncologist at the end of the day.  I still didn’t get it, but based on how I looked how could they think otherwise? My oncologist has dropped subtle hints’ that dressing up a bit might make me feel better. (We are very close friends; she is allowed to say that). Later that day she sent an emergency text saying that she would do a ‘house call’.  It was the time I was having my toes taken care of so that I wouldn’t limp, and I couldn’t make the meeting. She told them that chemo could be scheduled for the morning if I was up to it.  She understood that if I was out of bed, I was just looking my normal messy self and in this case, it was nothing to worry about.

Not yet  ‘getting the message,’ I repeated my performance of day one, sloppy trousers, same top, same, same.  The staff again looked worried.  “Have I seen my oncologist recently?”” I walk in and a friend who I hadn’t seen in daycare before came up and had to remind me who she was.  I’m terrible when I meet someone out of context.  She .too. was here for chemo. She looked amazing.  Well dressed, hair perfect, make-up also natural and beautiful, and neat, neat, neat.    She has very serious cancer and has not been too long out of a long hospital stay. I know she is a very private person and doesn’t discuss her cancer. She conceals it well.  She sat down and got her chemo within a few minutes.

While the staff dithered about the safety of giving me chemo, I waited.  I had to wait for the doctor in charge to give his OK and then wait as the nurse tried to puncture my tired veins looking for blood, so that the tests could be repeated to make sure. She tried four times and then called the senior nurse.  All this fuss to send yet another blood sample away for tests. This added an extra two hours to my four-hour stint.   Still I didn’t get it.

Another woman who has had a really tough time with cancer came in and sat across from me with her lovely husband.  She also looked well-groomed and attractive.  She moved through her treatment without problems. This is when a light bulb went on in my head, I GOT IT!  No one wanted to take the responsibility of giving a disheveled, sick-looking person chemo. If I were as sick as looked, I might collapse or whatever.  The senior nurse came over and apologized for having me wait but said she wanted to be very careful because I didn’t look well, although the tests were all right. At that moment I made my resolution. My resolution is to dress ‘up’ for medical procedures and meetings with doctors. I will spend at least a half-hour dressing.  w

What I will do with this time, it now take five minutes, but I will try.  Finding earrings will take about ten minutes of that time, locating my lipsticks aother  five minutes. Motivation: I can cut my chemo to four hours from six hours. It is the first week of Feb. I wonder if I’ll keep this resolution until March. I do love my comfy trousers and I hate ‘dressing in the morning’ when I actually don’t feel up to much. Will I find a middle way? . .

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More Beauty and the Beast

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My New Make up Johngustafson@hotmail.com 02074099823

The Make Up

Sophie recommended John Gustafson  for makeup.  He has his own salon at Fenwick’s and he has a year-long waiting list.  Come on! For makeup?  Give me a break.  I went on his cancellation list and lo and behold got a call a few days ago.  To say John is an experience is to under rate the situation.  I sat for two hours without symptoms (no D, V, C or N) It is amazing your level of interest when all the attention is on you.  He is enthusiastic about his work and positive.  I admitted everything.  Dressing time in morning 10 min., don’t wash face, don’t wear makeup, and stick on lipstick.  Out the door looking like something that blew out of bed.  He was sympathetic to my laziness and wrote LAZY in his notes.  Then he came up with the easiest dab to put on my face and wash it.  I tried it at home and it felt so good I actually missed it when I didn’t do it before I went to bed.Then some miracle cream and that is the whole story.

The mascara is a wand that looks like a sex toy.  The brush is made out of rubber and anyone, even me, can put it on.

But the piece de resistance was the lipstick lecture.  My lipsticks are beyond disgusting.  They are old, tops long lost, vile.  They can be found anywhere.  Bottom of disgusting makeup bags, boxes of face creams long out of date, back of drawers, under chest of drawers and worse ones in the bottom of my handbag   They have been with me through the sands of Jerusalem and Petra, through the dirt of New York and through the sun of Miami where they melt and reform. Can you imagine putting them under a microscope? GERM CENTRE. I’m sure they’re cause of my sore throat.  Low immunity plus dirty lipstick= vile germs.   So John gave me a talk.  He got out his old lipsticks and made me smell them (and I got out a few of mine).  I couldn’t believe it!Putrid is the only word I can use.   Have a sniff.   Then he got out the new ones.  NO SMELL or a lovely smell.   That putrid smell has permeated my bedroom.  I went home determined to throw all old lipstick and lotions out.  The next day I did it.  I promise my bedroom smells differently.  Also I washed my face today and put on the small amount of makeup he recommended.  Took 5 minutes and everyone said I looked well.

17 November 2009

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I looked in the mirror and an old woman stared back at me. NO NO NO.

Eyebrows. Time to push out the boat and try to look good. Why? Chances of beauty of any kind are remote. Never wore makeup properly, never took care of my skin, but now last-hour push for beauty. I searched the internet and found Sophie Thorpe. While I was studying Jungian analysis on a couch she was busy learning how to do semi-permanent eyebrows.   I don’t have much in the way of eyebrows.  I go to get what is left of them threaded and dyed and it still doesn’t do much.  WHAT WAS I DOING?  I envisaged paying a lot of money for self inflicted pain. Would I attract Dracula with my black eyebrows? Went in, had consultation.  A huge percentage of Sophie’s clients, maybe 80%, are cancer patients.  She kept telling me it wouldn’t look good for a couple of days.  It looks great.  She takes a small, and I mean small, needle and somehow makes a natural eyebrow.  She does it in a mixture of color so it looks natural.  I wish I had had done it when I first took out all the hairs of one eyebrow tweezing myself.  Now, if I lose my hair I’ll have a few eyebrows.  OK, this was good and it came out of cancer.

sophiethorpe.co.uk

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