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I have moments, particularly in the middle of the night, when I’m frightened of dying.  Every week I get a little weaker, and I’m frightened, it would be churlish not to fear death.  I’ve studied how people react to and suppress such phobias, but in the end it doesn’t help very much.  I understand why people repress their fears, why they invent amazing stories of heaven and hell, and why they sacrifice chickens in order to project their fears.  I certainly had enough analysis to have some understanding of all that.

Am I afraid of being alone at the moment of death?  Of course I am, but then again not really; most of the things that have happened to me, the traumatic and life-changing experiences, have happened to me while I was more or less alone. Being a single woman forces you to face things alone a lot.

I often think I might stop breathing tonight, or tomorrow night. I’m very conscious that things are getting worse every week, but I’m also conscious that the days are good, and I don’t want to die yet.  There are certain friends I haven’t seen enough of, even now.  I said I would write 100 blogs, and I’ve nearly got there … wouldn’t it be amazing if I got it right on the mark?

Plans are being made still: I’m getting more equipment; my room becomes more and more like a hospital; more carers are here to help.  I’m frustrated by how little I can do for myself, but I don’t wish I was dead; I still want that extra day, or that extra week, or that extra month.

The physical space I live in is getting smaller and smaller, and once the hospital bed arrives I’ll be finished.  My activities are not what they used to be – I read less, I watch more junk television.  But what does it matter, if I see my friends, once, twice, maybe 3 times a day?  And I still enjoy my food – perhaps not like before, but I know what tastes good.  And I have so much work to do still.  Work on my finances (boring), work on my family (emotionally testing), and things, the right things, to give away to the right people (tricky).

Two weeks have passed since the above was written.  I lie now in my hospital bed, waited on hand and foot, 24 hours.  We’ve gone through the commode stage and beyond, and now I have a catheter, so no more falling over on the way to bathroom.  I’m now bedridden, but I have to tell you it’s not as bad as I thought it might be; I’m not finished yet.  Stage by stage as I deteriorate, I still find pleasure in small things – even if it’s just feeling fresh after a bed bath.  I look forward to my meals – that hasn’t changed – and to visits from friends and family.

I wouldn’t have believed four months ago that my body would deteriorate so far, so fast, but the months have gone very quickly; and the down and down has been clear to chart, step by step.  But I can still, just about, engage with people , thanks to drugs.  I never thought I would ever take, much less need, so much morphine, which now I welcome, drug addict that I am.

I’m shocked; the door is closing rapidly.  My oncologist just left and she is very saddened by my condition and the fact that on one occasion I’d been left in pain – it’s only been one night, no maybe two actually, but they were horrible times, mistakes were made or it wouldn’t have happened.  I’m now on double the pain medication and hopefully will never have this problem again. I feel like I’m waiting for pain to come, but I hope that all my doctors are right and that I’ll never get that pain again, but that takes a lot of trust when once the system has gone wrong.  There’s a lot of wishful thinking, and trust, that goes into this.  I’m going to do the best I can to believe it.

What is the worst pain?  The psychological pain or the physical?  That’s a difficult shot to call.  When you’re sitting and watching the deterioration of your own body, it is an excruciating psychic experience, even when the drugs eliminate the pain.

Let’s look at how things have changed:  from having friends over for dinner, and going out together, and the theatre and all that, look at how much time I spend asleep now.  Last year my oncologist and I went out and had a lovely dinner at a restaurant I couldn’t possibly remember the name of now – couldn’t think of going there, let alone walking there now. I struggle to write this blog, with my friend Antonia.  I can’t think very well because of the morphine, but I don’t mind, I must get rid of the pain.

I know this will be a tough blog for people to read, but I think it’s important for you to know the truth.  Maybe this is the war on cancer people talk about, more hopeless than the Afghanistan war, no exit strategy.  It’s impossible to believe, you can’t believe in your own death. The idea of your own death is very difficult to get your head around, I can tell you.  It’s tough to live through, and it’s tough to think about and write about, and at the end of the day it’s very scary; but it’s even tougher on your friends and family and those around you every day.

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Food and friends – perfection

To say that these weeks coming up to the end may be incredibly special may sound deluded, but right this minute what I want to write about is the pleasure I’ve had eating with some friends. No big deal I know, but for me I’m not doing all the things I usually do, and the thought of food – always important to me – has become paramount.

First, the amazing breakfasts made for me by Martin, melon and berries and nuts, and sheep’s yoghurt that I fought against for ages, thinking it was too healthy.

And last Saturday I had this craving for a hamburger.  Now in America you don’t care because you get a hamburger everywhere, any time you want, but I assure you, I don’t.  My friend Richard walked in with his usual flat white coffee for me, and a croissant, and I said Richard I have to tell you the truth, I want a hamburger. So he stayed on till 12 o’clock, and went to a local supermarket and found an organic black angus beef burger, which he grilled for me, with a large tomato; it was absolutely fabulous, God’s gift to me.

Julia came over with a huge spinach pie – where did that go?  It disappeared into the refrigerator, and it was only me eating it, and now it’s not to be found.  Then it’s not my fault that the coffeeshop downstairs from me makes their own icecream, the best in London.  Asa my friend and I gorged on it (while she read her Weightwatchers magazine). We did the chocolate, the hazelnut, and the cherry yoghurt, oh my gosh too good too good, made me slightly ill but it was worth it.  My longest-standing friend Susie left me 2 great pots of chicken soup, Jewish penicillin, that she made while she stayed with me. Antonia also came over, we work on the blog but she’s also a good cook, everyone in my life is associated with good cooking, I think I’ll keep it that way.

What the hell, what a way to go out, my last few weeks, just eating the great food my friends make. The steroids keep me hungry, and my friends keep me fed, a good combination.

There’s a difference between this and paid-for care, no matter what.  My friends are foodies.  In fact it’s one of the few things they all have in common.  Asa and I used to play golf, it’s true, but we also used to peruse the chowhounds site on line, and find the best ribs and breakfast in Las Vegas, and boy did we find some strange places for great food. It’s hard to duplicate memories like that.

I started to become a tv addict.  Masterchef wasn’t on enough, so I would watch ‘Come dine with me’, which has to be one of the worst foodie programs.  People get invited for dinner, and the host or hostess is supposed to make a sumptuous feast for them, and the guests are chosen to be highly critical.  Some don’t eat vegetables, some don’t eat fish, others have never seen caviare, and they never warn their host of their idiosyncrasies.  The hapless host goes off to make vol-au-vents full of curry, throwing all the spices into the Magimix together, never tasting anything, and his guests accuse him of making them sick.  If that wasn’t enough they have to provide entertainment – I’ve seen them dress as animals. But no matter how hard they try, they will be criticized.

Margie in the old days happily making dinner with friends

This is actually the opposite of any dinner I’ve ever given – if people came and criticized I don’t know what I would do.  My specialty has always been Thanksgiving dinner, which I’ve done for about 40 years, and I try to invite non Americans, because I don’t want people trying to tell me that their grandmother makes thing a different way.  We’ve had in the past a turkducken, which is a turkey stuffed with a duck stuffed with a chicken, incredibly hard to do and ending up looking a disaster, but still we all thought it was amazing.  I was given due respect.  Every year I would try to make a significant number of pies – say 15 if 30 were coming.  For ideas I used to lean heavily on the Gourmet magazine, which has now gone out of business.  It was lots of fun, and people remembered it for years.

Recently I have loved watching ‘Two greedy Italians’ eating their way through Italy, stopping at grandmothers’ houses, heading for festivals, or finding sausage heaven.  If there is anything you need to know about mushrooms, these are the experts.  I love the fact that they cook what they find over a jury-rigged fire, maybe just in a can.

I dream about cooking at night, hallucinate making recipes (I can feel the knife in my hand, chopping herbs), and it’s always a shock to wake up and remember I’m no longer safe even to go into the kitchen.  So I leave it to my friends, and am very thankful that we share this passion.

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When I began blogging – back in November 2009 – I was heading towards a depression.  I’d been diagnosed with stage 4 cancer, and there was very little that could be done about it.  They had already given me six months oral chemotherapy – easy, no side effects – then operated on me three times, and then more chemo, and radiation too.  I can see why I was depressed.

Oral chemo saves the day - Martin and I take off for Mexico

I know what to do when I have a depression, because it wasn’t my first bout and I googled my cognitive behavioral therapist Bill Mitchell.  By an unbelievable serendipity, he had moved his office from the city (miles away) to around the corner from me.  I immediately booked an appointment and went to see him. We talked through the sadness of the disease and the prognosis, and what I could do about it.  At that point I had very little physical voice, but Bill remembered I could write, had written for the Open University for years as well as a book on child development, and he knew I had a sense of humor. He suggested I start writing a blog about my experiences with cancer. Alternatively because of my own years doing group therapy (I am a qualified psychotherapist), I start a group. I couldn’t face a group with my voice – it would have been difficult to be a group leader, a therapist, though not impossible as leading doesn’t mean talking all the time, it means being able to shut up.  But the blog intrigued me, because it was new and sexy.  In my 70s by then, a blog sounded pro-active and the way to go.  So I went immediately to the bookstore, and bought a book about how to write a blog, contrary as that seems. And from that point on, there was no stopping me.

I always thought that my blog would be funny, because my whole family had cancer and we always tried to laugh about it, even my poor mother lying in bed with breast cancer tried to be humorous about it, though I was so angry at the time I couldn’t get it.  And my cousin Nora found a funny side even with very serious cancer.    I’m sure it helps keep her alive.

My first blogs were terse, smart arse; I tried to be funny; but as my depression lifted, my blogs got more complex, and I depended on writing them and on the responses I got, as much as anything, to give me energy in my life.  I was very lucky that as my health deteriorated, my friend Antonia Johnson (who’d already been proofing the blogs) came up from Bath once a week to help me type these blogs, because otherwise I wouldn’t physically be able to do them.  Antonia nags me into writing, because she knows it does me good.  In fact when Antonia comes to town everyone clears out and we get to work.

One of the big advantages of the blog is that I can correspond with my friends – keep them up to date with how I am – without sending out endless emails, or trying to have telephone conversations, which I find very difficult, even though my voice has come back somewhat no one can understand me on the phone.  The sad thing is that this is all happening when some friends are going deaf, they take their hearing aids off at will so my kvetching can’t be heard any more.  But I am heard on the blog.  I am very moved by all the comments I receive, and I wish I could answer them, because people give a lot of thought to them, and it is deeply appreciated.   I’m very excited that so many people are reading my writing, it is an encouraging and invigorating experience.

My last blog will be written by Antonia and I’m beginning to think that it will not be too far off, but I have so much work to do before I leave this green and pleasant land.

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My son came to visit from New York in the middle of a busy schedule and totally rejuvenated me. I started to feel that I could do something besides sleep and be tired, and that I needed to get out more.  He’s just written and directed an independent film called ‘Price Check’ with Parker Posey and Eric Mabius and is in the process of editing, but through the magic of new technology we managed to see a rough cut.  Of course I am going to say that it is a wonderful film, but it really gave me confidence in his ability and talent.  I will now try to live to see it in the cinema.

Price Check: Parker confronting Eric

There was a lot of business to be done during his visit: we saw an investment manager, a lawyer, my accountant, and a friend who will organize my funeral.  This wasn’t exactly what you’d call a holiday, but I was able to turn over to Michael a lot of my major problems. And it was such a relief; I feel very lucky to be able to rely totally on him, one reads so much of families not getting along.  I was a single hippy mother – the odds were not in our favor.  He  remembers little of his childhood except that a lot of people ‘hung out’ at our house on Miami Beach and that of all the druggy, political types the Buddhist phase was the worse for him,  Meetings that were full of people chanting, ‘Nam yo horangi yo’ must have been tough for a seven or eight year old.

That was the business side.  For fun, we went to several of my favorite new neighborhood restaurants, but the best nights were spent at home watching Mike’s film, when he made supper for me, which in itself was restorative.  I find something special in my son’s cooking.

The whole experience of being at home, watching a film he made, eating a dinner he had cooked for us, made me feel proud and gratified, and excited for him and his future.  We have done some kind of turn around and now he seems to take care of me.

The last four days reinforced my decision not to have more chemo. Just think: if I had been full of that poison, really sick, I wouldn’t have been able to concentrate on meetings, or the film; or enjoy any food; and no doubt I’d have been in bed all the time.  It is again the idea of false hope (even if you just never know whether it is really false), but there’s a lot of it around, there’s no doubt. I prefer to keep my wits about me, to be realistic, and to face things the way they are.  And most of all, to keep enjoying a really good meal. I think all my money is going to go to expensive restaurants, can’t see buying clothes anymore.

Soon after Mike left, Sweetpea arrived (my friend who had come with me to the Truffle Festival in Alba last October).

The way I feel now is that – I feel normal now.  This is very strange, as I’m on heavy morphine, and steroids, which is not normal.  It’s bizarre to feel normal, but there it is.

out to Dinner with Sweetpea

Sweetpea and I are foodies, and I wanted to take advantage of it while she was staying. I called for a lunch reservation at Dinner, Heston Blumenthal’s restaurant at the Mandarin Oriental, and was told that the list was closed for three months.  I persevered and got through to the dining room where I was waitlisted for Mothering Sunday.  Dream on, I thought.

Sunday came and Sweetpea and I were half way out the door when she suggested we check the waitlist.  Amazingly we got a table and off we dashed. We were bemused to be given a lovely table overlooking Hyde Park.  The service was impeccable, but the young man who delivered the bread had a shaking hand.  It was as if he was doing a solo at the Royal Opera.  It must be something of an honor to have even the lowest level job at what has got to be one of the finest restaurants in – London? Europe? The World? Who can say.

The menu is made up of historic British dishes (1500-1900) transformed to modern British tastes.

'Meat Fruit', strange but succulent

My starter was visually stunning and delicious.  Called Meat Fruit, from 1500, it was a chicken liver pate shaped to form a mandarin orange and dipped into a mandarin gel.  Try that at home. I can’t remember having such a succulent taste sensation.

Sweetpea had two fat duck legs, Powdered Duck (1670), for her main course.  This is not a minimal menu.  The portions are generous and rich.  You won’t leave hungry.  I had a large delicious Black Foot pork chop (c.1860).  I think they ate well in those olden days.

Still, we managed dessert.  The signature dish, Tipsy Cake (c.1810), was a drunk brioche accompanied by spit roast pineapple; my friend went for the Chocolate Bar (c.1730) – any restaurant in London would have been happy to serve this (c.2011).

The expense of the meal was not of overriding importance.  It felt like we had been treated to the best of everything.  I was impressed that we got taken from the waiting list.  I get sick of having to be ‘Someone’ to have an ordinary Sunday lunch at the Ivy.  We were treated beautifully from beginning to end, never rushed. It also is quiet … hurrah.  There is something honest about the food: the joy of the best ingredients cooked perfectly.

I may not be in a remission, but whatever I’m in, it allows me to have some special days and special experiences, to treasure my family and my friends and our times together.  As long as I don’t check my bank balance all will be just fine.

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This is me welcoming everyone to my party

As my lovely goddaughter Georgia said, when she was helping me send out invitations to my birthday party, it was unlikely that all 60 plus would come.  But very nearly all did, battling through the snow, to my delight; all ages, from 3 months (Stella’s babe) through to sprightly 80-year-olds.

The chefs at the Royal China Club outdid themselves, piling on the dim sum, and the duck and all its important trimmings (I’m getting hungry just thinking about it, despite my current nausea).  Even my friend, infamous for his strange tastes – he’ll only eat seaweed at Chinese restaurants – was personally accommodated with enough to drown in.

We wrote a seating plan – not me, I was too sick, but Georgia and a friend did, almost entirely at random, because they didn’t know who many people were.  So a lot of shuffling together happened, and friends of mine going back decades met other friends who go back decades but in a separate strand.   They could have been at a masquerade party, because guests only knew a few other guests, and the chances of their being sat together were slim.  It made for some interesting conversations.

Fortunately, my friends are from a broad enough sweep that no one was in danger of running into their enemies or their ex-partners.

But all the young people were sat together, because it’s important to me: this is where friendships of the future are formed, here at Chinese restaurants celebrating an ancient friend’s birthday, rather than the usual, school and uni and the rest.

The most touching part of the evening was a Robert Frost poem recited by the actor and dear friend of mine, Richard Griffiths, who substituted my name for that of Frost’s daughter, Lesley:

The actor Richard Griffiths reciting a Robert Frost poem at my birthday party

The last word of a Blue Bird

As I went out a Crow

In a low voice said, “Oh,

I was looking for you.

How do you do?

I just came to tell you

To tell Margie (will you?)

That her little Bluebird

Wanted me to bring word

That the north wind last night

That made the stars bright

And made ice on the trough

Almost made him cough

His tail feathers off.

He just had to fly!

But he sent her Good-by,

And said to be good,

And wear her red hood,

And look for skunk tracks

In the snow with an ax -

And do everything!

And perhaps in the spring

He would come back and sing.”

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