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chemotherapy

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When I began blogging – back in November 2009 – I was heading towards a depression.  I’d been diagnosed with stage 4 cancer, and there was very little that could be done about it.  They had already given me six months oral chemotherapy – easy, no side effects – then operated on me three times, and then more chemo, and radiation too.  I can see why I was depressed.

Oral chemo saves the day - Martin and I take off for Mexico

I know what to do when I have a depression, because it wasn’t my first bout and I googled my cognitive behavioral therapist Bill Mitchell.  By an unbelievable serendipity, he had moved his office from the city (miles away) to around the corner from me.  I immediately booked an appointment and went to see him. We talked through the sadness of the disease and the prognosis, and what I could do about it.  At that point I had very little physical voice, but Bill remembered I could write, had written for the Open University for years as well as a book on child development, and he knew I had a sense of humor. He suggested I start writing a blog about my experiences with cancer. Alternatively because of my own years doing group therapy (I am a qualified psychotherapist), I start a group. I couldn’t face a group with my voice – it would have been difficult to be a group leader, a therapist, though not impossible as leading doesn’t mean talking all the time, it means being able to shut up.  But the blog intrigued me, because it was new and sexy.  In my 70s by then, a blog sounded pro-active and the way to go.  So I went immediately to the bookstore, and bought a book about how to write a blog, contrary as that seems. And from that point on, there was no stopping me.

I always thought that my blog would be funny, because my whole family had cancer and we always tried to laugh about it, even my poor mother lying in bed with breast cancer tried to be humorous about it, though I was so angry at the time I couldn’t get it.  And my cousin Nora found a funny side even with very serious cancer.    I’m sure it helps keep her alive.

My first blogs were terse, smart arse; I tried to be funny; but as my depression lifted, my blogs got more complex, and I depended on writing them and on the responses I got, as much as anything, to give me energy in my life.  I was very lucky that as my health deteriorated, my friend Antonia Johnson (who’d already been proofing the blogs) came up from Bath once a week to help me type these blogs, because otherwise I wouldn’t physically be able to do them.  Antonia nags me into writing, because she knows it does me good.  In fact when Antonia comes to town everyone clears out and we get to work.

One of the big advantages of the blog is that I can correspond with my friends – keep them up to date with how I am – without sending out endless emails, or trying to have telephone conversations, which I find very difficult, even though my voice has come back somewhat no one can understand me on the phone.  The sad thing is that this is all happening when some friends are going deaf, they take their hearing aids off at will so my kvetching can’t be heard any more.  But I am heard on the blog.  I am very moved by all the comments I receive, and I wish I could answer them, because people give a lot of thought to them, and it is deeply appreciated.   I’m very excited that so many people are reading my writing, it is an encouraging and invigorating experience.

My last blog will be written by Antonia and I’m beginning to think that it will not be too far off, but I have so much work to do before I leave this green and pleasant land.

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My son came to visit from New York in the middle of a busy schedule and totally rejuvenated me. I started to feel that I could do something besides sleep and be tired, and that I needed to get out more.  He’s just written and directed an independent film called ‘Price Check’ with Parker Posey and Eric Mabius and is in the process of editing, but through the magic of new technology we managed to see a rough cut.  Of course I am going to say that it is a wonderful film, but it really gave me confidence in his ability and talent.  I will now try to live to see it in the cinema.

Price Check: Parker confronting Eric

There was a lot of business to be done during his visit: we saw an investment manager, a lawyer, my accountant, and a friend who will organize my funeral.  This wasn’t exactly what you’d call a holiday, but I was able to turn over to Michael a lot of my major problems. And it was such a relief; I feel very lucky to be able to rely totally on him, one reads so much of families not getting along.  I was a single hippy mother – the odds were not in our favor.  He  remembers little of his childhood except that a lot of people ‘hung out’ at our house on Miami Beach and that of all the druggy, political types the Buddhist phase was the worse for him,  Meetings that were full of people chanting, ‘Nam yo horangi yo’ must have been tough for a seven or eight year old.

That was the business side.  For fun, we went to several of my favorite new neighborhood restaurants, but the best nights were spent at home watching Mike’s film, when he made supper for me, which in itself was restorative.  I find something special in my son’s cooking.

The whole experience of being at home, watching a film he made, eating a dinner he had cooked for us, made me feel proud and gratified, and excited for him and his future.  We have done some kind of turn around and now he seems to take care of me.

The last four days reinforced my decision not to have more chemo. Just think: if I had been full of that poison, really sick, I wouldn’t have been able to concentrate on meetings, or the film; or enjoy any food; and no doubt I’d have been in bed all the time.  It is again the idea of false hope (even if you just never know whether it is really false), but there’s a lot of it around, there’s no doubt. I prefer to keep my wits about me, to be realistic, and to face things the way they are.  And most of all, to keep enjoying a really good meal. I think all my money is going to go to expensive restaurants, can’t see buying clothes anymore.

Soon after Mike left, Sweetpea arrived (my friend who had come with me to the Truffle Festival in Alba last October).

The way I feel now is that – I feel normal now.  This is very strange, as I’m on heavy morphine, and steroids, which is not normal.  It’s bizarre to feel normal, but there it is.

out to Dinner with Sweetpea

Sweetpea and I are foodies, and I wanted to take advantage of it while she was staying. I called for a lunch reservation at Dinner, Heston Blumenthal’s restaurant at the Mandarin Oriental, and was told that the list was closed for three months.  I persevered and got through to the dining room where I was waitlisted for Mothering Sunday.  Dream on, I thought.

Sunday came and Sweetpea and I were half way out the door when she suggested we check the waitlist.  Amazingly we got a table and off we dashed. We were bemused to be given a lovely table overlooking Hyde Park.  The service was impeccable, but the young man who delivered the bread had a shaking hand.  It was as if he was doing a solo at the Royal Opera.  It must be something of an honor to have even the lowest level job at what has got to be one of the finest restaurants in – London? Europe? The World? Who can say.

The menu is made up of historic British dishes (1500-1900) transformed to modern British tastes.

'Meat Fruit', strange but succulent

My starter was visually stunning and delicious.  Called Meat Fruit, from 1500, it was a chicken liver pate shaped to form a mandarin orange and dipped into a mandarin gel.  Try that at home. I can’t remember having such a succulent taste sensation.

Sweetpea had two fat duck legs, Powdered Duck (1670), for her main course.  This is not a minimal menu.  The portions are generous and rich.  You won’t leave hungry.  I had a large delicious Black Foot pork chop (c.1860).  I think they ate well in those olden days.

Still, we managed dessert.  The signature dish, Tipsy Cake (c.1810), was a drunk brioche accompanied by spit roast pineapple; my friend went for the Chocolate Bar (c.1730) – any restaurant in London would have been happy to serve this (c.2011).

The expense of the meal was not of overriding importance.  It felt like we had been treated to the best of everything.  I was impressed that we got taken from the waiting list.  I get sick of having to be ‘Someone’ to have an ordinary Sunday lunch at the Ivy.  We were treated beautifully from beginning to end, never rushed. It also is quiet … hurrah.  There is something honest about the food: the joy of the best ingredients cooked perfectly.

I may not be in a remission, but whatever I’m in, it allows me to have some special days and special experiences, to treasure my family and my friends and our times together.  As long as I don’t check my bank balance all will be just fine.

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Snoring at the Day Centre

Chemo started early with the wait for blood test results which turn out to be fine.  I’m given a sedative routinely, I’m not sure why.  It turns out to be an antihistamine which can be bought over the counter. I’m being given ten times the doze intravenously.  I try to watch a truly impossibly weird film by a French psychoanalyst, called “Holy Mountain”.   Several packets of biscuits and lunch comes and I warm up a bit from the freezing cap (hair disappearing from everywhere but my head – to bring you up to date).   I fall asleep almost immediately and am tapped awake by a nurse.  I’m snoring so loudly that I’m interfering with everyone’s ability to think.  How embarrassing!  Ten minutes later, I can’t help myself and I fall asleep again.

This time I let out a snore which is so loud I wake myself up.  I look around and everyone is gone.  Where did all the patients go? The nurses are huddled at their station far enough away.  What did I do?

Now I’m home taking all the pills in some sort of order.  A friend  comes home and starts talking about a lecture on Quantum physics he has been listening to.   We listen together as he pontificates.  I feel nauseous.  I feel like Galileo’s wife who was worried about the bills and the shopping while he was looking through his telescopes.  I was contemplating where I was going to go  (bathroom, bedroom, bedroom, bathroom) when I got sick and he was contemplating the mysteriousness of the universe and that we created the universe through our consciousness.  It all can be found in

The God Theory: Universes, Zero-point Fields, and What’s Behind it All

By the time we finished this strange dialogue – me thinking V, N (vomiting, nausea), my friend thinking atoms appearing in more than one place at once – I realised it was all over my head including why I needed to take a huge tranquilizer to get through Chemo which is essentially painless.  I bet they cut down the dosage next time.  No-one ever wants to hear me snore including my friend right now.

And so to bed.

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