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May 2010

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There is a golden moment when you leave Chemotherapy knowing that it is your last treatment.  Friends suggest celebration and champagne, but I went to bed. The battle with the cancer villain felt like it was on ‘pause’ rather than finished.  It would be a month before tests would show if I still had cancer or not and even then I’ll always be on hold.

What has followed is a month of trying desperately to get back to normal.  Looking back it does seem absurd, but desperate people do desperate things.

I guess I had imagined that when chemo stopped I would feel elated and therefore, the cancer fairy would smile down on me and take me where I wanted to go.

Hoping to get my voice back to normal after almost a year of whispering I made an appointment -  two weeks after chemo ended – to see a specialist across the Atlantic.  It was a good idea … which I didn’t begin to have the strength to put into practice.  Never mind running before you can walk, first I needed to walk rather than hobble.

Then I thought, why not try acupuncture?  Hopefully, the magic needles would give me my energy back. But I kept thinking that lying for hours with needles stuck in me was not unlike chemotherapy: what was the matter with me? Did I miss it? The morning of the appointment, one week after the final chemo, I was too sick to go, so that took care of itself.

Maybe it’s best to begin with basics, I thought.  So I booked myself in to see my hairdresser.  Of course I only had a few hairs left, but vanity spoke and I was convinced I would feel better if the hairs were brunette rather then grey.  Also I was sure that if my hair was cut it would grow back better.   This, too, was a semi failure.  After three hours and three tries the color finally worked on my damaged hair.  I still had to wear a wig or scarf when I went out, but somehow I felt better. Is it vanity or an intense desire to look ‘normal’ again?  I did leave the salon feeling much better; I imagine that if women were bald they might still go to the hairdresser, just to get their skulls shined, and would leave feeling beautiful.

I just found the energy (as one does) to get make up done.  After six months mostly spent in bed, I thought I was looking ghostly.  I walked out having bought more make up than I would ever have the energy to put on.  I did get an amazing lipstick that doesn’t come off once it sets;  I managed to get a big smear on my neck and couldn’t get it off. Oil was supposed to work and I ran to the kitchen to get olive oil.  No luck. Oh well. My neck was red for a few days. No one mentioned it.  It is not noticed among the other changes.

Losing weight always helps, or so I thought, because it is the one thing you can control.  I tried no carbs, but after a week felt stranger than ever.  On to the low fat diets, and that didn’t even last a week … so much for control.

Then I got desperate and did something dangerous.  On the internet  I found the idea that anti depressants might cure the symptom of hand and foot tingling and burning.  So I found a psychiatrist who was willing to prescribe it for me.  I ended up with nausea and exhaustion. I went to bed for three days, lost my appetite and felt sicker then I had after the chemo,  so that is the end of that experiment.  The positive aspect was that I lost a few pounds and my appetite still hasn’t come back.

I’m not out of ideas yet and if you follow my blog at http://cancercurmudgen.com/ you will see what happened when I went to the health resort.  I can still try a host of alternative therapies, but my health insurance won’t cover them, which is a sobering thought.  For now, I return happily to my bed thinking that rest is the best cure – and it’s free.

In my quest to renew myself after two years of cancer treatment I signed up for four days at a fancy heath spa outside of London. It seemed like such a good idea at the time. When I last visited it had been going through a Japanese period, but this had all changed in favor of commerce. Now hen parties were accommodated, and business groups attended week-long wellness courses and fitness training .

An elderly nanny checked me in and a retainer took me to my superior room.  It was lovely, overlooking the garden, and I decided that bed would be my first choice for activities. I tried the TV and it had twenty channels; ten were in Arabic. The ten in English looked promising, but within five minutes I broke the TV and could get no channels. Then I tried the bath that had amazing water pressure, unknown in the UK, but I couldn’t empty it.  When I finally left the room and returned, the key no longer worked. Superior rooms need superior minds.

I had arrived too late (by five minutes) for lunch and I was directed to the busy new snack bar.  I found that whoever dreamt up the menu thought coping with stress, not trying to diet, was foremost in the residents’ minds. I tried to find something healthy and ended up with a carrot and hummus wrap, followed by an oatmeal cookie.  I decided not to worry about health if it was going to be tasteless.

Chemotherapy had left me in need of a facial.  So I signed up with the nanny receptionist and I waited and waited for the therapist while lots of twenty somethings in white uniforms who looked like spaced out aliens walked past me. Naughty me, I was in the wrong place. Finally, my very own twenty something showed up.  I made the mistake of telling her I was just finished with Chemotherapy.   I thought she might run out of the room, but I could see her mentally reviewing her instruction book.  She said that if I had cancer I could not have massages BUT IF IT WAS TERMINAL, I could do anything I wanted. I hadn’t considered this as a ‘final exit’ possibility.

That evening I decided to brave the group table and I was treated to a long discourse on how to cure my laryngitis. (A paralyzed vocal cord caused by cancer.)   At the end of dinner, I must have got tired and cranky and after telling the waitress that the cod was cold and had bones in it, I confessed to my companions that I had cancer and that I didn’t think lemon tea and ginger, whiskey or lemsip would help my voice.

When I found out the next day that my dinner companion, who I assumed was a wealthy client, was a blind diabetic who was illiterate, I felt badly.  She had been brought up south of Naples in one room with an abusive father, a goat and a sheep.  She was kept at home to work on the farm and never sent to school. At eighteen she was sent to London as a maid and worked for Clement Attlee’s family before he became prime minister. Now she comes to the spa twice a year and is treated like royalty.  I believe the owners have a charity, which provides for this. It made me feel more positive.

I decided to keep quiet about cancer and try the Thalassotherapy pool.  I had a swim in my warm dream pool and my ‘spaced out therapist’ turned on the strong jets and started chatting with another therapist.  I tried to climb up to the jets and started to slip on the steps.  I didn’t fancy drowning, so I kept safely near the edges. By the time I got used to the pool, the therapist paused in her chat long enough to say it was over.  It was an expensive 20 minute swim; I think the therapists take their revenge for what must be low paid rather boring work.

Next I met the chiropodist where I was able to relax and almost fall asleep. I woke suddenly when the point of her scissors stabbed my big toe.

I thought my Pilates workshop had gone well, but I was gently told that I wasn’t ready to exercise yet and I needed to do some walks first. Since I had trouble walking to class this seemed wise.

Having nothing to do on the last day I went to a clairvoyant.  That was as surreal as it comes.  My father’s spirit came into the room and after he told me how terrific I was gave me a trophy.  When I was back home I was reminded that my father had died on this day eleven years ago.  I have no belief in the spiritual world but that was about as strange as it gets.

I spent the last few hours in the drawing room reading an Agatha Christie mystery and I left just in time before Miss Marple found a corpse and had to call the nannies in for questioning.

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